Millie and Louis were filled with excitement and anticipation when they learned they were expecting twins. The news was especially heartwarming for Millie, as twins were common in her family. The couple eagerly looked forward to welcoming two new babies into their lives.
Their joy was soon tempered by devastating news from the doctors: their unborn children had anencephaly, a severe condition characterized by underdeveloped parts of the brain. Babies with this condition rarely survive long after birth, if they make it to birth at all.
Tragically, Millie and Louis lost one of their twin daughters, Skye, shortly after an emergency C-section. This loss was a profound blow, but they found solace in their surviving daughter, Callie, who was born healthy.
Their painful experience highlighted the need to prevent well-intentioned but hurtful comments directed at parents who lose a baby during a multiple birth. One incident, where a thoughtless remark made Millie burst into tears, underscored this necessity. The individual who made the comment had no idea about Skye, and Millie couldn’t bring herself to explain the painful truth. This moment spurred them to take action.
They founded the “Skye High Foundation” and introduced purple butterfly stickers to NICU units worldwide. These stickers serve as a silent but powerful signal, indicating that a family has lost one of their babies during a multiple birth. This gesture helps prevent parents from enduring unintentionally hurtful comments during an already difficult time.
Millie and Louis know they cannot change the outcome for Skye, but they find comfort in their efforts to support other parents facing similar challenges. Their foundation and initiatives, like the purple butterflies, provide solace and support to families navigating the heartbreaking journey of infant loss.
As Millie aptly puts it, “Ultimately, I will never be able to stop this from happening, but the more support groups we can set up and put things in place like the stickers, the better it will be. It’s the hardest thing anyone has to deal with.” Their commitment to helping others in their time of need is a testament to their resilience and compassion.
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